We are HOME! Bran is
cozy in his p.j.'s watching a movie, and it feels so incredible to all be
together. I wanted to give you all an update, and please, pass this on to all
the people you reached out to for prayer. We are so grateful, so grateful. We
want to give glory to God for all that's happened this week.
As you know, on Friday
things were not looking good. The Dr.'s told Matt that Bran's kidney function
was dropping every day, his blood pressure was dangerously high, he was
non-responsive to all the meds, and he was carrying over 10lbs of fluid, and it
was rising each day as his kidney function was dropping. They thought they would
have to move him to I.C.U. and begin dialysis to get the fluid out, and that
would then help the blood pressure drop and get him into a safer place. The
specialist expressed grave concern for him, and we were afraid, really afraid.
By late afternoon, after Bran's dr. made phone calls to specialists in other
parts of the country, it was decided to give him the second chemo treatment, and
then wait to see for one more day.
Friday night my dear friend Tyler
drove to the hospital for a late night delivery of a blessed icon of the Divine
Mercy Jesus. A year ago Tyler's grandmother was sick and was told her life was
basically over. This icon was loaned to her and told that it had been all over
the world and that the people who lived with it for a while experienced healing
in some way. His grandmother did recover, and although her health isn't perfect,
she's living a good life long past when she was told she'd be here. When she
heard about Brandon she told Tyler to bring the painting to us.
As I rode the elevator back up to Pediatrics, I read the words along
the bottom of the artwork.
Jesus, I trust in
You.
I wasn't feeling trust,
I was only feeling fear. I said, "Well, I'll say it until I mean it." And I
began to read that line over and over and over. I went back to the hospital room
and Bran had woken up. I hung the icon on the head of Bran's bed, and lay down with him because he seemed restless.
He'd been emotionally low all day, he seemed depressed, and expressed a lot of
homesickness. I suggested we pray together, and told him I'd start, and he could
repeat each part after me.
I whispered...
"I am healthy, I am healthy,
thank You Jesus, I am healthy.
I am healed, I am
healed, thank You Jesus, I am healed.
I am thankful, I am
thankful, thank you Jesus, I am thankful.
Bran repeated each
line, and then without a word just took over leading and I began repeating each
line he said.
This was the
litany/prayer he whispered...
I am blessed, I am
blessed, thank You Jesus, I am blessed.
I am strong, I am
strong, thank You Jesus, I am strong.
I am wonderful, I am
wonderful, thank You Jesus, I am wonderful.
I am blessed, I am
blessed, thank You Jesus, I am blessed.
I am courage, I am
courage, thank You Jesus, I am courage.
I am loved, I am loved,
thank You Jesus, I am loved.
I am light, I am light,
thank You Jesus, I am light.
I am the stars, I am
the stars, thank You Jesus, I am the stars.
I am the sun/son, I am
the sun/son, thank You Jesus, I am the sun/son.
I am grass, I am grass,
thank You Jesus, I am grass.
I am flower, I am
flowers, thank You Jesus, I am flowers.
I am birds, I am birds,
thank You Jesus, I am birds.
I am the breeze, I am
the breeze, thank You Jesus, I am the breeze.
I am a dog, I am a dog,
thank You Jesus, I am a dog.
I am the way, I am the
way, thank You Jesus, I am the way.
I am the truth, I am
the truth, thank You Jesus, I am the truth.
I am the life, I am the
life, thank You Jesus, I am the life.
I am mighty, I am
mighty, thank You Jesus, I am mighty.
I am water, I am water,
thank You Jesus, I am water.
I am the tune, I am the
tune, thank You Jesus, I am the tune.
I am the bread, I am
the bread, thank You Jesus, I am the bread.
I am the Eucharist, I
am the Eucharist, thank You Jesus, I am the Eucharist.
I am the chalice, I am
the chalice, thank You Jesus, I am the chalice.
I am the tabernacle, I
am the tabernacle, thank You Jesus, I am the tabernacle.
I am the Church, I am
the Church, thank You Jesus, I am the Church.
I am the Lamb, I am the
Lamb, thank You Jesus, I am the Lamb.
I am the family, I am
the family, thank You Jesus, I am the family.
I am peace, I am peace,
thank You Jesus, I am peace.
I am sleepy, I am
sleepy, thank You Jesus, I am sleepy.
I am in heaven, I am in
heaven, thank You Jesus, I am in heaven.
And then he was asleep. I lay there on his pillow, now soaking wet with my
tears, and could not believe how holy the air in the room felt, and how at peace
I was. I had the same sensation I'd had years ago at St. Jude's when the teens
and I had an over-night lock-in on a carpeted area next to the glass-walled room
where the tabernacle was. I remember laying there in my sleeping bag in the dark
with my sleeping kids all around me...in awe, feeling Jesus so close by, so
physically present. I felt Him in that hospital room with Brandon and I, and I
told Him, "I trust You, I trust You, I trust You..."
In the morning Brandon
woke up bright eyed and full of giggles and good spirits. We went for a long
walk in the hospital and just enjoyed each others company...and he needed to
walk to help keep the fluid out of his legs. We went and played Wii in the play
room for a while, and when we were heading back to his room he suddenly began to
get sick. He threw up all over the floor and scared the hell out of me. I kept
my cool, but this was really upsetting behavior for him...he's only thrown up
once or twice in his life with us, and never from this illness. I got him into
bed, and he sipped tea with honey until he said he was tired and wanted to go to
sleep. He was shivering and upset. The nurse checked, no fever.
When he woke up several
hours later, his blood pressure was down, he'd lost a pound since the night
before, and the best...his kidney function was suddenly higher than the day
before.
He was still not losing
enough fluid, so they put him on a much stronger kind of med thru his I.V., and
we waited.
After dinner that night I received a text from
someone at our co-op, telling me a priest who's renowned for his healing
ministry, was on his way to the hospital to see Brandon. I'd heard about him
from several people over the years but had never met him. When he walked in the
door of Brandon's room I was struck by his gentle voice, his beautiful, African
accent, and that he seemed rather shy. He sat right down and said that God had
told him to come, and so he came. He began to talk quite boldly about many
different things...(including about several assassination attempts on his life
over the years and how God had saved him repeatedly, and talked about the people
who were brought back from the dead in the Bible...how God can do anything...and
one thing that jumped out at me was when he said,
"With out fear, Satan has no legs."
And he shared part of Job's story from the Book of Job where this is
illustrated in the way that Job goes to offer sacrifices in the temple one night
and he's worried about his kids and asking God to not let any harm come to them,
etc..., and Fr. Ignatious said, "Fear is not worship." Job was acting in fear,
he did not have his eyes on God, his attention was on his fear...and how fear is
a foothold for Satan. He said Satan studies us, learns our weaknesses, and then
hits us there...and how fear is a powerful tool he uses so that he can get our
eyes off of Christ.
He told us that disease
and suffering are not God's plan for us, that Brandon's illness is not God's
will. That day God had told him Brandon was going to be healed, and he shared
this with us. He then gave Bran the anointing of the
sick, blessing his head, hands, and feet with holy oil, holding a crucifix against his
forehead while casting out all sickness and disease from...and he named organ
after organ, fingers and toes, each hair, finger nails, and on and on. He gave
him the Eucharist, prayed over him some more, and then told him, "Okay. You are
healed. God has healed you, Brandon. Have a good life."...or something along
those lines...and barely shook my hand because he suddenly seemed shy again,
and he was trying to walk out of the room without us saying anything to
him... but I just grabbed his hand in both mine, so he had no choice...and
basically that was it.
The Dr. came and said
she was thrilled with his progress, amazed at the turn around, and felt that if
he continued to pass fluid thru the day without the diuretic in his I.V.,
that he'd be going home today. When the doctor left his room, Bran looked up at
me from his bed and said very matter of factly..."Well, strong prayers the
priest said. He said God's healing me."
And here we are,
HOME.
Brandon isn't in
remission yet, but as of today his protein levels are dropping for the first
time. As always, he is in God's loving hands. We don't know what the future
holds for us, but we trust God to be in the middle of it with us. We also know
that we will be surrounded by love and prayers and care, because this week we've
had such a taste of what you are all capable of in the way of support...and the
support this week has been mighty indeed.
We are grateful beyond words for all the love
and prayers that have been poured out for our family. We have felt very carried,
and in our moments of great fear we'd been reminded to keep turning our eyes
back to Jesus. All week Matt said, "God has never let us down, never let us
down...He's not going to start now."
Please keep praying for
Brandon's healing, and for the wisdom of his Dr.'s.
On Friday another
healer (and Catholic mystic), Brother Paul Miller, is coming to our home to pray
over Bran. What a blessing.
God is good, all the
time.